{"id":14334,"date":"2025-03-10T16:24:32","date_gmt":"2025-03-10T15:24:32","guid":{"rendered":"https:\/\/www.tepaseul-magazine.fr\/accueil\/?p=14334"},"modified":"2025-06-12T16:01:13","modified_gmt":"2025-06-12T15:01:13","slug":"sante-3","status":"publish","type":"post","link":"https:\/\/www.tepaseul-magazine.fr\/accueil\/sante-3\/","title":{"rendered":"SANTE : LES MALADIES RARES"},"content":{"rendered":"\n

Des centaines de milliers de personnes sont aujourd’hui malades, souffrent de sympt\u00f4mes, pr\u00e9sentent un tableau clinique, ont souvent un ou plusieurs handicaps mais leur pathologie n’est pas identifi\u00e9e.<\/p>\n

\u00a0<\/p>\n

La fili\u00e8re AnDDI-Rares, Maladies Rares Info Services et l’association Sans Diagnostic et Unique<\/strong> (Toute nouvelle association)<\/strong> s’unissent afin de proposer des solutions aux personnes malades sans diagnostic<\/strong>et \u00e0 leurs familles.<\/p>\n

\u00a0<\/p>\n

Ce partenariat unique et in\u00e9dit r\u00e9pond \u00e0 une vraie probl\u00e9matique. Les personnes sans diagnostic vivent les situations les plus dramatiques, dues \u00e0 une triple peine : ils souffrent de la maladie, ne peuvent mettre un nom sur celle-ci, ni s’entraider (dans une association, une communaut\u00e9 en ligne…) en raison justement de l’absence de ce nom.<\/p>\n

\u00a0<\/p>\n

A cette occasion l’association Sans Diagnostic et Unique a vu le jour et des forums d\u00e9di\u00e9s aux sans diagnostic sont lanc\u00e9s sur le site : maladiesraresinfo.org<\/a><\/strong>.<\/p>\n

\u00a0<\/p>\n

Voici une vid\u00e9o pour mieux comprendre la situation des malades SANS DIAGNOSTIC<\/strong>.<\/p>\n

\u00a0<\/p>\n

https:\/\/www.youtube.com\/watch?v=3p-sJq_Ng3c<\/a><\/p>\n

\u00a0<\/p>\n

\u00a0<\/p>\n\n\n","protected":false},"excerpt":{"rendered":"

Des centaines de milliers de personnes sont aujourd’hui malades, souffrent de sympt\u00f4mes, pr\u00e9sentent un tableau clinique, ont souvent un ou plusieurs handicaps mais leur pathologie n’est pas identifi\u00e9e. \u00a0 La fili\u00e8re AnDDI-Rares, Maladies Rares Info Services et l’association Sans Diagnostic et Unique (Toute nouvelle association)…<\/p>\n","protected":false},"author":2,"featured_media":13741,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2119,54],"tags":[],"yoast_head":"\nSANTE : LES MALADIES RARES - Tepaseul<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.tepaseul-magazine.fr\/accueil\/sante-3\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SANTE : LES MALADIES RARES - 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